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  1. For Dalek's art contest. Link.

  2. Tahuri
    Latest Entry

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    Entry 85

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    Lego DeLorean Is 100% Remote-Controlled Brick Awesomeness

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    Link to the future

     

     

    Found this on Gizmodo, EPIC WIN! I would buy this in a heartbeat!

     

    Also added my Twitter section to the content box on the left (no, your other left...)

     

    Tah, Tah!

     

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  3. UngluedBike
    Latest Entry

    I was very sad to hear today that Andre Hurley (You should all know him as MaskCollector, owner of the Platinum Avokhii), has decided to sell everything in his collection. After years of preparing to create a museum of every part and collectible made, its all gone now. He's supposedly keeping the Avokhii, which is sad really, because no one else will have the chance to complete what he started. For one of the biggest collectors in the community to sell up, I'm really wondering what has happened to our truly beloved theme.

     

    Until next time,

     

    -UngluedBike

  4. Had an old CD, thought I'd play with it. There's a video on it.

     

    Anyway, I covered it in fingerprints, ran it along a carpet, and played frizbee with it. It still worked. :)

     

    Maybe CDs are a lot tougher than we think they are?

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    Recent Entries

    MatoranBuilder
    Latest Entry

    after my brief break from bzp, i'm back again, and so is my blog. i've changed the look and feel of it, and i'll be posting more often. :)

  5. The best movie ever if you haven't seen it yet go watch it right now if you have seen it go seen it again.

     

  6. Bionicle Dragon
    Latest Entry

    I thought it's been seven days...

     

    HAS IT!!?!!???!!!!1

  7. Konahrik
    Latest Entry

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    The goal here was to update the Zyglak, while retaining some of the aesthetics from the original combiner.

  8. Ghidora131
    Latest Entry

    WOW!!!

     

     

    BZPower has been running all this time, with quite a ton of setbacks, but thankfully it's still going strong. Let's all celebrate the 14-year anniversary of everyone's favorite Bonkle site! :D

  9. Enfero Lunos
    Latest Entry

    Yeesh, it's been like forever

    Well, school started a couple weeks ago. My AP psych, AP calc, AP physics, and french teachers are teachers I've had in the past for other subjects, great teeachers, but I already knew I would have them. My AP stats teacher, from what I've heard, isn't that great, but I've yet to have a problem with her. My econ and english teachers were the only ones I didn't know about before the year began, but they both seem to be good enough teachers.

     

    At my school, we have "senior walls". It's a stretch of wall where it's decorated, and the year is put up, then signed by every senior. Unfortunately, this year, The "Class of 2009" is written in a ###### surreal style, and there's not really any background. I would rather have an unoriginal but good-looking wall than an original yet hideous one. Oh well.

  10. Okay, October Oldish Occasions!  Wow! What an existence this beautiful spiral of life is. I guess this is a hello, life update and hopeful return to this lovely internet homey. Trying to see if easier for me to upload embed IG content instead of resizing.  Which made me weirdly more okay with being more goofy on IG posting with main goal of it being for BZP blogging and likely only seen by around 3 humans, haha. 

    October art first, blobbyblogbog below it!

    The doll obsession did indeed overtake my October!

     

    WELL FAIL

    on me figuring out embedding.

    So Ugly links..

    So sorry.

    Does anyone know how?

    to please help?

    if it's possible?

    Me as a tree baby. I was eating the dirt from the rosemary tree planter!? And absolutely enjoying it! Baby Me cravings. Sneaking it repeatedly. Guessing that was a missed nutritional deficiency given my genetic glory. 8.5hrs. Small photo size, mechanical pencil, art fixative, watercolor paper. Done on clipboard while battling my broken body. 🤒🫠 Little gift for my mom. 💚

    First attempt at hammering/murdering 😭 flowers for dyed fabric, not yet sure what to do with this, but, yay Pinterest! I staggered outside waaay back in September to get these, thus shattering me. 😆 I haven’t been outside since aside from in and out for a few car rides. (Edit: now going to make flag decor for the dining room/my new little- soon-to-show-cooknook for this!)

    did I already post this here, haha?

    Culinary crafts! Older content. Spice crumb cake in my misfit sized cake pan stack. Chocolate chip coconut oil muffs with walnut & choc on top. Spice and sweet potato sweet squares, walnut chocolate pastry pods + brekkie granola rounds. Cheddar cheese petite pizzas, I was thrilled to figure out they fit in coffee cans for freezer storage. Olives feel luxurious. Light and fluffy butter loaves (actually oil because $) that were altered from a Texas Roadhouse roll recipe and this a bit stubby. Horizontal slicing to the rescue & flash frozen on trays as always. Grateful to have grabbed our four lovely loaf pans when we left. Oven Naan breads, a fan of the King’s (KAF brand) recipes I am!

    Random barely conscious to be honest foodprep and bakes for my mom’s meals. Also, a few “flops”-attempts at making recipes my body didn’t reject absolutely. Some were yum but not very pretty! I Apologize for your eyes. 🙈 Bakes on the treat trolley for fieldwork and fire starting family friends. Choc walnut for my mom, made sugarsub/free cheesecake for broken pancreas me! Peanut butter frosted nutter bars + gingersnap brownies for my mom. Weird colorful vegetable dishes everywhere because trying to for-dr document the diet and hopefully figure out what things are helping/making me more sick after years of starving and medical complexity. Figuring out wheelchair cooking wasn’t somthing I expected to be so complex. (This was prior to the past few months of my major kitchen rearranging. The goal was to make it wheelchair accessible with the free barn and basement supplies I could find amid major illness stupor/cooking, eating, then trying to survive symptoms afterwards.😂) *THE MOST IMPORTANT CONTENT HERE: Pic with my adorable tiny baby Alice-in-wonderland“dessert” spoon from the new set my mom ordered upon my dream request. She’s the best ❤️

    When your mom’s work gently demands a family photo and you initially are repelled, then realize it’s a great opportunity for family photos… AKA to let your happy weirdo show (?girl autism? Some day…we shall officially know!?)Life’s too short and sweet for taking oneself too seriously, according to me at least! …Sorry Mom and thanks for going along. 😆🌻 Featuring my mom’s green grandchildren, and all the normalness of our existence. Doll clothes, some of the human clothes, and wreaths concocted by me. Bee costume for another doll longago, yellow bloom circa 2021. Foam sheet Sunshine sign for pretending this thing was by design. I think these were in September or October, my brain is a bit of a shell from being this unwell. Regretting not going fully faceless on these because I prefer hiding behind my alien children 💚😂.

     

    (Wrote it bit ago/old info, but actually wore this for the 3rd total time today for a dr apt!) Wish I’d gone faceless- oh well, still surviving and smiling is a celebration!? Saltwater Taffy Striped Sweater! Which prompted plush phamily photos, of course! 😆 💕My mom’s weave work! Indescribable gratitude💕She just finished it, started the knit in spring 2022 for me! Shocking it fits, I’ve lost 30lbs since due to severe sickness. (Hoping such photos won’t highlight my facial skinniness🫣. if I’m honest I was fighting my own body for 4hrs on the floor after food ingestion on the day I photographed this. Typically it’s only a daily two hour post meal mess, now thankfully (desperate experimentation with my already owned Medication ). Trusting there is some higher purpose to this) Skirts and rose headband made by me prior, fur vest was a gift, glasses are just blue shades. Ballet shoes from a brief period of life when I was pre-diagnosed and tried excitedly to live, walk and move normally. Great for wheelchair use since not much need for sturdy shoes 😂. Shasta (boy baby Yoda)’s jacket selfdrafted & made by me for 18” dolls long ago, his deer sweater knit by my mom for another plush, and his tiny pseudo hat a random crochet by me. His corduroy shirt is actually a little sack bag, a gift from my mom’s coworker! Luna (girl baby Yoda)’s ballet inspired outfit is more 18” outfit stuff I made long ago. Grateful for unexpected fit!Mum (more than just a bear)’s styling my babyhood burgundy #winniethepooh dress, my childhood necklace + turtle bracelet + a ballet “bun cover” bought longago but taken for doll hats instead. Mum’s cape is actually a ballet skirt by me. #Toadstool stool a repaint by me. My new pink room has made me incredibly happy..even if I barely go up there due to being an ambulatory user of my wheelchair! PS I really wanted to make red dino & fancy ballerina costumes for my children to go with this, but don’t want to waste my tiny bit of energy on stuff for me. Update; Have worn outfit 1 total times when flung from my fungi forest for physical sig’ needs for social security. Hard to justify the “fancy” of it when 1 messy and forgetful homehobbit!

    Candy corn caricatures of my mom and I from the glory of random craft trash, discount Go Grocery Avocado hot sauce bottles,their random black bags as a backdrop, and electric tape eyes. Salt lamp gift from family friends 🧡 The heights are accurate when I’m wheeling, haha.

    My magnificent mom went along with morning-baked cookie delivery for friends and family. I tried to ride along for delivery, an almost unheard of thing for me to leave the mushroom kingdom at all , but nobody was home and I physically crashed too soon. My mom made the many treat taxi trips the next noon for me, for I can never repay she!

    @SPIRIT!!! May I tag to thank you overexcitedly with many virtual dance-a-happy? If not wanting to be involved in my weirdness I'll remove this! Thank you again for your genius! Every few-and-far-between human who enters the home sees it first thing and happiness it brings! EDIT:added the most important pic with their paper thank u sign sorry it’s shadowy/sunny bleached a bit hahahaIMG_9138.jpeg.5033f99f45f054a6d77b8a1cfd5a6fe0.jpeg

     

    The Woodermelon! Brilliantly named by a kind internet citizen upon viewing the original nameless creation. Many thanks to them and I must soon share with them. It has a baby now too thanks to more tree cutting, haha! My mom also finally finished putting buttons on the back of Baby Yoda’s sweater she made also two years ago! 

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    Already posted on BZP but oh well, IG transfers! Small kitten of a forum friend! Thanks for allowing sharing! 5x7 from July 2023. I have lost so much memory so my own art is now surprising me, haha. 17hrs- was very slow and distracted this time and am so sorry for its resulting scratchiness! Honoring noble Bob. Pencil, mechanical pencil, and art fixative spray.

     

    Apologies if unwated tagging here-can remove happily if any of ye request!

    Shoutout to BZP bro @Bambifor remembering BZP birthday best wishes while I was barely alive! Thanks again! Coda (Anatolian Shepherd) 8x10” finished in September. 17.5hrs (mid medical episode art so snailstyle 😂). Pencil, mech’ pencil on watercolor paper. Thanks bunches to @otterfor allowing sharing (and for not minding lack of permission to pencil the pretty pet!).

    (I am trying very hard to remember which of these drawings I’ve already posted, so sorry I’m repeat posting from the edit-illnes-rabbit hole haha. Also for accidental screenshot in swipes. 🙈) “Graphite bites!” Things from my mind while fighting body for dear life -because clipboard power haha (and questioning my power to finish anything in such hours) 3x3 watercolor + mechanical pencil drawing. 5hrs. Birthday (fancy pilot?) cat for my bro shipped off in a before-made birthday bonsai box with sausage and squiddies because why not! ❤️ Cannot for the life of me keep up with where he’s living, so shoutout to him for tolerating 20 accidental sends of a creepy questioning GIF. 😂

    “Graphite bites!” Bunny Snow for Mom! 3x3 watercolor + mechanical pencil drawing. 5.5 hrs. Accidentally was eaten by a origami paper and paint-chip turkey for a tiny thanksgiving gift! And finally an opportunity a pop a petite present out too, a prior made Birdy ornament inspired by her on thanks-day morn ❤️And just of me trying to wrap stuff from the trunk of thingies I collect randomly amid struggling at self propelling on a weak wheel day. 😂

     

    Sorting content in an attempt to awaken from the amnesia of the past six month sick-stupor. Today is a good day, the best since another ER trip a few weeks ago (I have officially lost count of the ER trips I’ve made for new changing different issues over my life haha..and keep all my medical bracelets in a garland chain because in all things there can be beauty 😂)I give thanks {..} and send sunshine your way, sorry for spamming and thanks for tolerating me all 3 of you here. 😂❤️Big little things that made bleak days blessings back in fall ❤️ Our new aunt Jane’s kindness is too vast to explain. Bedding! Girl bedding, that unplanned matched my new room perfectly like all my childhood magazine dreams! (Hi from Mr. Mooseykins..yes that’s what I named him 😂) And her sweet seasonal sewing send overs. And a lilac rose from family friends certainly delighted my alien children! I have a problem with turning everything into hats, but perhaps there’s no harm in that? Oh, and my new NON-prescription mobility aid from mom’s store for when I journey to the top of the stairs on occasions rare! Tiny lantern to avoid insomniac wheelchair crashes haha. And my dream -doll size spoons that I daily use (?autism thing?)! Thanks to mom supporting splendid strangeness of my highly specific dream request. And ER fun in October. Those bed poles will forever be lowly worm.

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    So missed it here since a lifetime ago in September!

    When somehow my everyday existence became a blur as I survived full blown falling into a rabbit hole without medical care (yet tons of prestigious doctors at Duke-who abandoned my case, ignored every near death plea for advice, said go to an ER-where the Mission hospital ER would discharge me, EDIT FEB 20 I just Google that place and found this hahaha (:https://wlos.com/news/local/mission-hospital-ncdhhs-report-details-patient-deaths-injuries-delays-care-asheville-health-centers-medicare-medicaid-immediate-jeopardy) still paralyzed and look at my limp body like I was lazy/wasting their resources and send a 7,000 bill that my cashier mom would try to pay ) and tried to retain consciousness in ER situations on a daily basis. Looking back at these months, it’s a miracle I’m alive. And my mom hasn’t absolutely lost her mind witnessing this. To be honest, I didn’t think I’d make it to 2024, I don’t think anyone did. I basically had accepted after the Jan 15 2023 stroke that I was unofficially on Hospice stuck on our couch and trying to make the best of it. In July I was tired of this, years of starving yet surviving due to my complex sickness. I decided to eat. Instead of controlling my symptoms by starving and waiting on Dulke diagnostic aid. I underestimated how severe the results of this would be, and am pretty amazed by the years of function prior achieved by miserable starving to control my diseases.  

    Not that getting in like 400-600 calories a day was much more than starving. Along with the daily 4hrs of fluid loss, writhing, hyperglycemia and that stranded me in a certain room that began to feel like a prison cell exactly 1hr after I dared bite into some delicious broth, vegetables, meat-or anything. 

    I was chugging two 2 liter bottles of electrolytes within an hour on the floor writhing…while my glucose was over 200 on no carbs while the fluid loss, LUQ pain, face flushing, etc raged. Every single day. An hour after eating, precisely-waiting to pounce on me. Clipboard art and crafts to cope while turning on The Frey Life videos on a shattered phone via YT. Wondering how other people live. Realizing how horrifying my own quality of life has been for years. Hoping to gain some insight on how human beings in a safe home life/environment on a daily basis live. What it even means to have a family support system. 

    There is a lot I don’t remember. There was a lot of lying on the floor, feeling possessed by some raging pain monster. Lots of being so weak I was barely managing to propel my wheelchair home alone. But not like anyone was there to help-my mom had to work or we’d both starve without having any social/family/medical support aid.

     

    In like, September, on a week so weak I was wondering if it was my last,  I rolled to the med drawer and grabbed my discontinued use Plaquenil for my UCTD, Undifferentiated connective tissue disease. 

    I started taking x4 the dose, 800mg. Have you ever been desperate to live? The daily GI fluid loss was cut to 2hrs daily instead of 4. My glucose wasn’t as bad. I told my good Duke rheumatologist and since then I've been prescribed 400 mg daily. The few  pubmed articles  I glanced at later support my positive experience with trying this- if I do have some form of endocrinology/cancer disease. 

     

    The horrors persisted, but more manageably. In October I got very excited and blasted Christmas music, decided to undertake doing a “real Christmas” this year in our new 101yr old family home! Because 2023 was the year of “home/life setup/seasonal decor totes/wow, normal moms have these things but mine never could”. So I started planning the holiday decor designs and working away on turning our old ornaments and junk in our Christmas trunk into things matching and new. I did a lot of ornament painting via the bathroom floor, (I have zero personal pride at admitting this, it kept me alive in such hours while unable to get ongoing medical care). . 

    My mom was trying to get me applied for Medicaid whilst the free-till won disability/SSI lawyer was still trying to prove I was incapable of surviving myself and needed SSI probably forever given Ehlers Danlos alone. My mom first applied me in mid 2022. My insurance ran out in January 2024 and my mom likely couldn’t afford to add me on hers at work. So we waited. I’ve been on Duke full financial aid for years, but also parent insurance deductible payment stuff and ER bills on them/now just Mom.

     

    Mom-She finally got legally divorced in October ‘23, so grateful. What a wreck.  Exdad still won’t sign over the retirement bit, or her mom’s inheritance car to her so it’s a nice lawn ornament, haha. The car on which he canceled the insurance on in late July-stopping us from driving legally, forcing her to buy a new old car,  stopping my mom from renewing its insurance it not having the title of it,  & stopping getting med help for me for the new daily ER fluid loss emergency. He didn’t know this stranded me into a life threatening crisis. He didn’t/doesn’t know this. I shudder at the scales of justice, so thankful to have survived it. So strange to me that someone like him would be sent a disabled child-He so often cruelly said to people “Did your parents have any kids who survived to adulthood? Bet they regret that!”...I have somehow, thankfully been one such personage surviving so far to this age, in spite of every arrow aimed at me. And found out in such situations there are endless ways to be personally happy-It’s an inside job! . I’m not even surprised any of this was done. Weird how you can see so much sadness it becomes easy not to even react.Anyway, sorry, hope it doesn’t sound angry- I’m not,  just the unfortunate events in a chronologically current recording.

    Takin' a drive, I was an ideal

    Looked so alive, turns out I'm not real

    Just something you paid for

    What was I made for?

     Some day those legal papers will come, perhaps, but tisn’t exactly pressing. Each time anything moved on the legal stuff it was a backwards breakdown stress spiral for my mom. I am grateful to say these horrors are now over, and things are much better!  Now we can happily go on living, as if certain people in life don’t exist, without being every sec’ reminded of it, each conversation being about it,  and go on enjoying that things are at last settled, safe and right. (EDIT: MID FEB ‘24: Car paperwork at last acquired, mom sold the sabotaged lawn ornament at last! Insurmountable gratitude!)

    Medically, nothing was changing except one day I got super hungry, ate a lot of walnuts instead of the just like 500 cal daily meal that nearly killed me. My throat closed and the extra bad face flushing again. The Epi-triggered and resistant “anaphylaxis” again. The whole suspect Carcinoid Crisis again. Since 2020 that ugly thing. ER at Mission hospital, 6 am. Oct 16th. I made medical info cards a week prior because I’m tired of trying to explain my diagnoses. This thing is effective (RIP privacy when sickness shreds the remaining “dignity”. I now have 3 laminated and take to appts. the dysautonomia diagnosis new since September tilt table test. ). . I told my mom to ask for Octreotide. My mom mistakenly thought my allergist had suggested this, told them so . He did not. This was my own research. I could barely breathe much less tell them this. They gave octreotide and my airways opened up. I went home. Allergist appt to rerun allergen labs to be sure, like 1 lab order from my annoyed primary care doctor for the fluid loss. Still not allergy or high Tryptase.

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    So my good allergist (guy who found my tick bite Alpha Gal allergy saving my life so long ago), was like “yeah, still looks like carcinoid/a net tumor, especially given this, smart move on the Octreotide!” haha.  So I contacted him later and my good rheumatologist for Duke and UNC GI cancer and new repeat endocrinology referrals for carcinoid/NET tumor/Possible diabetic condition. And UNC approved my mom’s full financial aid application for me! So since I’ve waiting on those to get scheduled some day, a new GI doctor appt at Duke in April (I had to fire the one Duke  GI lady who left me to pretty much die after years of telling me it was surely Celiac disease and “just one more EGD, enteroscopy, etc”.) 

    I still had a useless Duke primary care dr 3hrs away, but we were unsure who to use here given the digital Mychart records needing to be accessible and making sure Medicaid would cover if I was approved. So I waited. 

    My high glucose raged during all this, I’d eat carrots or peas and it would go over 180. Tiny amounts of carbs sending me over 220 and half conscious symptomatically. I tried so many different foods, tried breaking it into two tiny meals to see if the GI got less angry, but nothing. So broth, protein, vegetables, and stevia seasoning became the mainstays while the glucose, face flushing, hyper thirsty, and GI episodes continued to rage on starving level calories. (Like 600 calories daily, robbed of yummy things). Meanwhile my frightening since-September 80-82lb weight just maintained. I’m 5’4”. Prisoner of war aesthetic going on there. Oh well. Alive!

    Thanksgiving!a brief bit about it, i’ll blog content beyond October later, just a general update trying to grasp the spiral of this! I’d barely finished most of the decorations for the day , got to wear the vintage granny clothes I adore from my new 80+ yr old mom’s aunt (weirdness of mom being adopted) and it was wonderful with my mom off-day. We watched livestreams from ActionKid of the Macy’s Parade while eating POPCORN in our new popper & putting up the new upcycled decor by me (later to be blogged). We had such good times. One of the best thanksgivings I remember. Actively FB messenger spamming my brother. Every holiday prior was just the 4 of us and major medically-dietarily restricted/we just didn’t do anything.  Also, prior, my ex dad hated the traditions, seeing his family at holidays, birthdays etc.  and my mom had none aside from her peculiar puppy mill owner estranged mother and prison brother. 

    So getting to celebrate “real family holidays”  in a gloriously nontoxic home environment is not something we’ve really experienced (except for my mom, as a child) before. It was a dream. I finally don’t feel unsafe 24/7! Near heaven! The 2022 thanksgiving prior I tried to pull out our old Xmas decorations but just cried instead over the shambles of our lives. 2023 thanksgiving was a DREAM. We are actually very much recovering and learning to live. If we’re all still around next year, I think it may be ever better! 

    I decided to make a traditional thanksgiving dinner, immediately freezing some dishes for Christmas. Decided to eat tons of whatever and everything I wanted that day, even if I went into a coma. That went SO badly hahaha. I took extra plaquenil. No regrets. Totally threw up. Eating is torture but so worth it.Would do again. I felt so alive, it’s so nice to eat with other people. I had no idea how poor not being able to eat together makes the  “quality of life”. Wrote a disturbing song in the stupor that followed that I’ll later repost, hahaha.

    And then after that Twas all out Xmas mode-still…Making some rushed decor, decorating the new old hold for the first time, trying to color theme each room!, lots and lots of cooking and baking! Pinterest recipe bliss! Planning excitedly for my brother to visit after not being able to for a year. The first time the home wasn’t even fully renovated and we didn’t do much of anything, decor or food wise. This meant unplanned renovations and rearranging of the kitchen to be more disabled/wheelchair friendly to reduce my suffering,haha. 

    The “Cook Nook” was evolving- my cozy cottage closet wheelchair workspace! Such kitchen shuffling. Still a work in progress. (EDIT FEB ‘24..Done!)My mom getting me an instant pot has massively helped me given my inability historically and now especially to stand long at the stovetop. Need to take updated pics and add to this.  Also, I am relearning how to cook via food scale using mostly metric, for ease, fewer dishes, and nutrition calculations. Thanks to King Arthur Flour recipes for encouraging this. I am relearning how to calculate the servings/nutrition on my own recipes and all recipes once again (one day I won’t have to Google nutrition on 3oz raw “x” every time). I did this from 2017-2020 (post severe food allergies + ingredient label checking drama, PICU, hospital) as per my illness and appetite never existed,  and I was scared I’d accidentally lose weight and almost die again. Then in 2020 I just became major sicker, unable to eat enough for a normal creature to live, started gaining weight, then the celiac train wreck began. So all this nutrition content stuff is major Deja Vu. 

    Sometime in December? We found out I got approved for Medicaid , and now it appears to be because the US government has officially accepted that I am disabled/useless in working society. I am so grateful and honestly cannot believe it. It seems like I may not have to show up in virtual SSI court in March now for the disability lawyer to “prove I’m disabled” from showing my medical records that the government already has. (EDIT FEB ‘24: Virtual court date is a day after my b-day, perhaps I can control symptoms enough to eat cheesecake & take sickness a day prior if I completely dehydrate, haha? Yolo or no? )

    So in December the try for local primary ensued. My mom is doing all the paper and scheduling work as usual (cannot Adult). I went to one nice doctor on December 7, broke down crying weirdly over my situation (normally numb to the chronic near death experiences). She was amazing, but couldn’t accept me-I needed an internal Med-Ped doctor to “accept my case” as I was “too medically complex”.  Mom’s Hunt ensued, I got an appt. in the UNC based local system that linked with mychart & their better ER 30 mins away. 

    I went to their ER for labs/my chronic emergency level fluid loss and malnutrition on Dec 13, like: “hi I have no primary care yet please help.” 

    That was useful, hadn’t had labs since September. They’re all rough as one would expect, but I’m managing to keep my electrolytes acceptable with salt cravings, bullion and lemon water. 

    Basically: The internal primary care appt. Finally came! It was, to my horror- a male doctor. I vowed to never have another given a few terrible experiences with them due to my age, gender and being underweight (as if I chose this nightmare-then I blame myself for it,  though it’s not something I can control/fix.). which had been up a full day prior so was very out of it. The ER  labs were useful for them, too. The intern doctor had an intern too, who was very nice and shockingly interested in my load of recent medical notes and since July daily recording diary of my food fluid, med and intake and vitals timebook. The book I made out of desperation trying to figure this out or find someone who could. Shockingly, they gave good advice and accepted my case!  They understood Ehlers-Danlos, amazingly. They asked what I wanted to start on, I begged for help on eating and drinking. He said the human body can process ~20g protein per two hours for muscle building/retaining, and with my weight & intake tolerance being so low I definitely had muscle wasting (I, who only ate 4 slices broth and bread daily-for over two years while desperately waiting on Duke GI doctors to figure out this wasn’t celiac and why food made me so sick). Apparently ill & old people die from bowel necrosis due to muscle wasting in situations like mine. No other doctor ever mentioned lacking protein or muscle wasting making everything worse. Duke doctors gave no aid aside from “I can send you to a dietician if you’d like it”-as if generic advice would aid the unmanageable food reactions. Also, male Dr was awesome not a nightmare. AWESOME. He saw my real actual email which literally contains Sarasbabyducks given my past pets, and he saw that& was like EPIC I RAISED RUNNERS, what breed did you have? Beautiful carcincle Muscovy, Ancona and Pekin were so loved by wee me. Given struggling to verbally communicate my mom also 2nd visit was like “we think she’s autistic- and my doctor IS FORMALLY DIAGNOSED and told me this!? I also found his IG sand apparently is into alternate herbal things & didn’t roast us for desparate experimenting!

    The new doctors don’t know why my glucose is crazy high, and said I was allowed to try carbs with the high protein and see what happens/monitor it.They also bumped the UNC endocrinologist referral up for Carcinoid/NET tumor/possible atypical diabetes and scheduled a six week later progress check-this is unheard of in my life to have ongoing medical follow up, help, or doctors who genuinely care if I live or die. I am so grateful. 

    I also got clearance on my plan to eat YUMMY HOLIDAY FOODs during Christmas week when my bro came and not monitor vitals/anything!  So prior to bro visit,  I embarked (cautiously so Christmas plans wouldn’t be ruined by me being sicker) eating at least 20g x3 daily and increasing my foods/trying some fruits/vegetables I normally get hyperglycemic from.  Shockingly my glucose and GI episodes improved some. It’s so hard initially to learn how much protein’s in what. Then Christmas! The so longed for first real family Christmas in the new old home, fully renovated! Bro came a day later than hoped (traffic), but made it on Xmas eve night! I’ll later blog of it! On Xmas week I tried to eat all the yummy foods unrecorded, mostly! It was a delicious disaster haha. Been Still recording glucose x3 daily, but thankfully not fluids or blood pressure now. That was tons of exhausting work, especially when barely functioning already. Getting back to the protein!...

    This concludes the illness fog written content mostly from goodness knows when! Free to frolic on to editing the somewhat later project photos as a hopeful attempt to reawaken my brain from months of hours-daily medical meltdown endurance without local care access. Grateful to be in this beautiful world, for my mom, Medicaid approval, new Internal Med doctors, and the few pretend friends who perhaps, for some reason, are kind enough to read the ramblings of a happy hermit, sick lunatic. 

    This is where I stopped writing, haha. 

    Current tiny update February ‘24, I’ll fill in gaps later if I get the chance!: Jan. 2 I started some alternative herbs and medications my mom had been considering, given doctors not helping and time running out .Things supported by scientific papers and research, a hopeful cure if carcinoid tumor/pancreatic cancer. 3 herbal pills and 2 fluid meds. My glucose at least is starting to markedly stabilize (FEB update)! Supposing it’s the combined CBD, my DIY-not-to-die plaquenil, tumeric and berberine along with the other high powered liquid thing? The hours of horror fluid loss GI wise are harder to survive as I’m trying to eat more-some days I got in 1000 calories-a miracle for me.  I was in the new awesome UNC ER again Jan 13? after eating in a restaurant for the first time in 6 years-a glorious event for me to leave the home at all! For a funeral of my honorary granny. Backed up to my ribs despite chronic fluid loss-surprising and why it’s like glass shards in ribs when eating or drinking often. I’ve been out of it since and barely able to eat given my GI being badly broken, now require a new old people med device to somewhat more safely stay home alone, but now, mid Feb, feel like I’m coming out of the fog. No regrets, the restaurant was delicious! And now I’ve local GI care from UNC helping & as I write this current bit I’m leaving for my first combined colonoscopy & EGD done simultaneously later today. 6? EDG & enteroscopies and one colonoscopy at Duke from 2021-23. Issues found but no helping. Hoping they aren’t scared to fully sedate me here, haha. That only other 2022 Duke colonoscopy..Then the guy just blamed me for being too skinny, and was unable to find anything structurally, not being able to complete the procedure fully. I was half conscious and in pain screaming, when supposed to be all out anesthesia’d. Extra fentanyl this fine day of February, please! Also weirdly, my parent's equitabled distribution disaster was precisely 1 year ago today-When DVPO exdad dumped all my old & future medical bills on my former homeschool medical mom & attempted to take everything, almost suceeding after we were forced to flee homeless in 2022 to survive him. No support financially, what is mythical alimony and good lawyers? My mom having horrible mental breakdowns. Why exdad. I almost wheeled then walked out into traffic after this, no one in my life has ever made me feel more worthless and like a burden for breathing the air. How can one cope with being a burden to their own mother? This was post Jan 2023 no-med care post stroke when I could barely move, drink, swallow, eat or talk. Home alone surviving on the couch with a pencil in my hand giving me the will to try to “live to give, live to love” in little ways-if nothing more on earth I could say for.

    Turns out I'm not real

    Just something you paid for

    What was I made for?

    But somehow, we stuck together and smiled after the storm. So grateful she got her mother's ex-puppymill and land, a little lumpsum, and we have blessed freedom!

    Anyway, tis all my bitty remaining brain cell can summon at the moment! Life is honestly improving so rapidly this year it’s dizzying! Being able to even blog a bit (even if a bit off-balance) is proof of this! local good drs, hope to survive/cure the one thing, getting to often enjoy family meals with my mom-never allowed historically ( medical and family toxicity situations), finally finishing the few leftover home renovations, the first year she’s fully divorced finally and mostly financially in an area of safety! I’ve dubbed it the year of (my mom’s) Julie’s Jubilee with laughable glee! And I’ve given the home and acres around it a loving dub of “Misfit Meadows” I am indeed making a sign for our front room, haha! So weird to be allowed to be in a home so happy!

    I absolutely apologize/will edit if it’s not allowed to be so real here,  or if this content isn’t BZP friendly. And for photo embed fail pleasehelp? I have no perspective on what it's like to live as an ordinary person or how rules apply here. ‘Appy impaired unaware alien here. Virtual hugs to all, tis all! Missed blogging in the BZP beauty where I can be a misfit with so few openly judging me for the fairytale ramblings, thanks to all thee! 

    "Think I forgot how to be happy...

    ..something I can be!"

     

  11. I became a member of this wonderful website.

     

    9 years.

     

    I feel old.

     

     

    ~

  12. Music:

     

    1) White & Nerdy - "Weird Al" Yankovic

     

    2) Canadian cool dude - "Weird Al" Yankovic

     

    3) Weasel Stomping Day - "Weird Al" Yankovic

     

    4) Candy Shop - 50 Cent

     

    5) Emo Kid - Adam and Andrew

     

    6) Lonely - Akon

     

    7) Bananza - Akon

     

    8) Chain of Fools - Aretha Franklin

     

    9) Chemical Drag - Astronaut

     

    10) Cryin' Out Loud - Astronaut

     

    11) Julia 84 - Astronaut

     

    12) Girlfriend - Avril Lavigne

     

    13) Copacabana - Barry Manilow

     

    14) Stayin' Alive - The Bee Gees

     

    15) Stand By Me - Ben E. King

     

    16) Check On It - Beyoncé

     

    17) Naughty Girl - Beyoncé

     

    18) Beautiful Liar - Beyoncé & Shakira

     

    19) Red Flag - Billy Talent

     

    20) Let's Get It Started - Black Eyed Peas

     

    21) My Humps - Black Eyed Peas

     

    22) Three Fingers - Buckethead & Saul Williams

     

    23) Mustang Sally - Buddy Guy

     

    24) What The World Needs Now Is Love - Burt Bacharach

     

    25) Everytime We Touch - CASCADA

     

    26) Switchback - Celldweller

     

    27) Ridin' - Chamillionare & Krayzie Bone

     

    28) Hello Zepp - Charlie Clouser

     

    29) Don't Forget The Rules - Charlie Clouser

     

    30) Rib Caged - Charlie Clouser

     

    31) Shithole - Charlie Clouser

     

    32) The Final Test - Charlie Clouser

     

    33) Creeping In My Soul - Christine Lorentzen

     

    34) Battlefield - Cirque du Soleil

     

    35) Theme from "Six Feet Under" - Countdown Singers

     

    36) The Goonies 'R' Good Enough - Cyndi Lauper

     

    37) Breakfast Machine - Danny Elfman

     

    38) Whip It - Devo

     

    39) I Touch Myself - The Divinyls

     

    40) Break On Through - The Doors

     

    41) Light My Fire - The Doors

     

    42) People Are Strange - The Doors

     

    43) Alabama Song - The Doors

     

    44) Hello, I Love You - The Doors

     

    45) L.A. Woman - The Doors

     

    46) Peace Frog - The Doors

     

    47) Boogie Wonderland - Earth, Wind & Fire

     

    48) Mr. Slue Sky - ELO

     

    49) Livin' Thing - ELO

     

    50) Going Under - Evanscence

     

    51) Fat Kat - F.A.K.T.

     

    52) Theme From "Family Guy" - Family Guy

     

    53) Fergalicious - Fergie

     

    54) Glamorous - Fergie

     

    55) London Bridge - Fergie

     

    56) Fully Alive - Flyleaf

     

    57) Cassie - Flyleaf

     

    58) Red Sam - Flyleaf

     

    59) Breathe Today - Flyleaf

     

    60) I'm So Sick (EP Version) - Flyleaf

     

    61) Fully Alive (EP Version) - Flyleaf

     

    62) Breathe Today (EP Version) - Flyleaf

     

    63) I'm Sorry (EP Version) - Flyleaf

     

    64) Cassie (EP Version) - Flyleaf

     

    65) Much Like Falling (EP Version) - Flyleaf

     

    66) That's Life - Frank Sinatra

     

    67) Ooh La La - Goldfrapp

     

    68) Hoist The Colours - Hans Zimmer

     

    69) Day-O - Harry Belefonte

     

    70) The Cloak Theme Song - Jason Steele

     

    71) The Afterlife is France - Jason Steele

     

    72) Hard Knock Life - Jay-Z

     

    73) Egyptian Magician - The Jerky Boys

     

    74) Firecracker Mishap - The Jerky Boys

     

    75) Terrorist Pizza - The Jerky Boys

     

    76) Bird Feed - The Jerky Boys

     

    77) Hot Pockets - Jim Gaffigan

     

    78) Theme From "Halloween" - John Carpenter

     

    79) Waiting On The World To Change - John Mayer

     

    80) Slow Dancing In A Burning Room - John Mayer

     

    81) Anakin vs. Obi-Wan - John Williams

     

    82) Jedi Rocks - John Williams

     

    83) Ring of Fire - Johnny Cash

     

    84) Milkshake - Kelis

     

    85) I Like To Move It - King Julien

     

    86) The Candy Cave (Knox Remix) - Knox

     

    87) Blue Hands - Knox

     

    88) Animals - Knox

     

    89) Crocky - Knox

     

    90) Door Stealer - Knox

     

    91) Foil Hat - Knox

     

    92) How - Knox

     

    93) I Have An Apple - Knox

     

    94) Magnetic Hero - Knox

     

    95) Mean - Knox

     

    96) Mechanical Elephant - Knox

     

    97) Race Car Fantasy - Knox

     

    98) R080T1C - Knox (ACTUAL TITLE)

     

    99) Secret Man - Knox

     

    100) Stink Bug - Knox

     

    101) Tinker Man - Knox

     

    102) The Tiny Man Song - Knox

     

    103) Treeday - Knox

     

    104) I'm So Strong - Knox

     

    105) Talking Drum Madness - Knox & Jason Steele

     

    106) Penguins (In My Hair) - Knox

     

    107) Yellow Book - Knox

     

    108) Twenty-Four Eleven - Knox

     

    109) Smoke, Smoke, Smoke That Cigarette - Leroy Van Dike

     

    110) The Candy Cave - The Letter Y

     

    111) In The End - Linkin Park

     

    112) Ohmygodimonfire - Logan Whitehurst

     

    113) California Dreamin' - The Mamas & The Papas

     

    114) Monday, Monday - The Mamas & The Papas

     

    115) I Saw Her Again - The Mamas & The Papas

     

    116) Creeque Alley - The Mamas & The Papas

     

    117) Glad To Be Unhappy - The Mamas & The Papas

     

    118) Anywhere But Here - Man on Earth

     

    119) Grow - Man on Earth

     

    120) Lackluser - Man on Earth

     

    121) It Feels Like... - Man on Earth

     

    122) Irresponsible Hate Anthem - Marilyn Manson

     

    123) The Beautiful People - Marilyn Manson

     

    124) Heart-Shaped Glasses - Marilyn Manson

     

    125) mOBSCENE - Marilyn Manson

     

    126) (s)AINT - Marilyn Manson

     

    127) Disposable Teens - Marilyn Manson

     

    128) The Hate Song - Marilyn Manson

     

    129) Personal Jesus - Marilyn Manson

     

    130) Tained Love - Marilyn Manson

     

    131) This is The New ###### - Marilyn Manson

     

    132) The Dope show - Marilyn Manson

     

    133) Sweet Dreams (Are Made of This) - Marilyn Manson

     

    134) Family Affair - Mary J. Blige

     

    135) Lapti Nek - Max Rebo Band

     

    136) Forget To Remember - Mudvayne

     

    137) These Boots Are Made For Walkin' - Nancy Sinatra

     

    138) Promiscuous - Nelly Futardo & Timbaland

     

    139) If Everyone Cared - Nickelback

     

    140) If You Were Gay - Avenue Q

     

    141) Stupid Girls - P!nk

    142) Get The Party Started - P!nk

     

    143) Sleepers, Wake - Bach

     

    144) Toma - Pitbull & Lil' Jon

     

    145) Infra-Red - Placebo

     

    146) At The Rave Inn - Pram Maven

     

    147) I'm Gonna Be (500 Miles) - The Proclaimers

     

    148) Dani California - Red Hot Chili Peppers

     

    149) Ride Of The Valkries - Richard Wagner

     

    150) Eyes - Rogue Wave

     

    151) Paint It Black (Live) - The Rolling Stones

     

    152) Remind Me - Röyksopp

     

    153) Push It - Salt-N-Pepa

     

    154) Love Song - Sara Bareilles

     

    155) Breathe Me - Sia

     

    156) I Got You Babe - Sonny & Cher

     

    157) Stewie's Sexy Party - Stewie Griffin

     

    158) Burnin' In The Third Degree - Tryanglz

     

    159) Photoplay - Tryanglz

     

    160) You Can't Do That - Tryanglz

     

    161) The Night The Lights Went Out In Georgia

     

     

     

    Movies:

     

    1) Saw II ®

    2) The Shaggy Dog (PG)

     

     

     

    TV Shows: (TV Shows sorted by Episode #)

     

    * Heroes:

     

    1) Genesis

     

    2) Don't Look Back

     

    3) One Giant Leap

     

    4) Collision

     

    5) Hiros

     

    6) Better Halves

     

    7) Nothing To Hide

     

    8) Seven Minutes to Midnight

     

    9) Homecoming

     

    10) Six Months Ago

     

    11) Fallout

     

    12) Godsend

     

    16) Unexpected

     

    18) Parasite

     

    20) Five Years Gone

     

    * Robot Chicken:

     

    1) Midnight Snack

     

    2) Toyz In The Hood

     

    7) Vegetable Funfest

     

    10) The Deep End

     

    17) S&M Present

     

    2) Federated Resources

     

    * South Park:

     

    5) Fantastic Easter Special

     

     

     

     

    • 9
      entries
    • 16
      comments
    • 13983
      views

    Recent Entries

    Khols
    Latest Entry

    So this is the new site design, eh? I have to say it's not what I expected, but I'll have to deal with it.

     

    I just came here to stop by, I'm not considering doing anything special or important.

     

    Also uh

     

    What does the spinning Rahkshi head mean again.

  13. Wyrd Bid Ful Araed
    Latest Entry

    You know, on par, I think the closing ceremony was a little more barking mad than the opening one. I think when you have Eric Idle dressed like something from Captain Scarlet pretending to try to dance with a group of bhangra performers who just swamped a stage previously occupied by a bunch of line-dancing Romans, you have topped giant inflatable Voldemort being attacked by an army of Mary Poppins

  14. -[July 11, 2009]-

    My blog is back! And my fingers are killing me.
    I'm moving to the US, and today I had to take apart all my Bionicle sets, so of course my hands are full of dents

    I'll be writing entries regularly now.


    Terakk
  15. BZPower_guest
    Latest Entry

    it may be temporary but maybe permanent. I will check around 1 or 2 times per month due to lack of time. Too much school ><. And besides Im no longer having as much thinking as before. so bye until then.

  16. Schnee 1
    Latest Entry

    Sorry for the lack of activity on my part. I've been...well, here's a list.

     

    -Taking an interest in airsoft! I have a Double Eagles L96 with an NC Star 3x9-50E sporting scope

    -Sent to a stationary death march (aka Marching Band camp)

    -Playing Fallout 3 (creepy and profanic but addicting)

    -Entertaining my cousin who lives in St. Paul but visits every summer

     

    So, if anyone reads this, leave a list of what you've been doing lately.

  17. Tavakai
    Latest Entry

    yeah so I'm emailing people back who wanted to help me with my eagle project and wondering whether they'll judge me for doing so at 2:30 in the morning and also a couple weeks after most of them sent them

     

    (in case anyone's wondering I'm doing genealogy indexing which is basically putting photographed census records and draft cards and stuff into a searchable database so people can look up their family history and stuff, and also I have until november before I turn 18 so I have to hurry since I want to index 10,000 names. don't worry guys I have a friend who did 15k and he finished in time)

     

    why did I come to bzp to post about this the world may never know

     

    if I do get my eagle it'll definitely be after my premier membership runs out though because I have a month left I think so I won't be able to tell you guys about it here

     

    edit: holy cow there isn't autocapitalization???????????????????

    bzpower is looking pretty fancy

  18. Tahulo
    Latest Entry

    Well, for those of you who play Magic: The Gathering on any level other then casual, the Shards of Alara pre-release is coming up this weekend, and although it's not a super-powerful looking set, I'm still super-psyched. This is my first pre-release due to my location in texas not being particularly close to where they did hold the big pre-releases; and that segways to the issue of there not being any more traditional pre-releases. Although I've never personally been to one, I can really see there universal appeal to the crowd that does go to these massive events, playing in three to five events and just having an overall good time with a thousand other player. But there's another side to this; as a player whose never actually been to a pre-release, I'm quite excited at the fact that I'll be able to participate. I do think that the big pre-release's should return though, perhaps not at such a high level though, if an event drew half as many people as a regular pre-release, but there were more of them spread out over a larger area, I think it would be better for everyone.

    Anyway, I've been reading up on the spoiler, and I've found a few things I'd be pretty happy to open at the pre-release (Aside from the obvious, IE: Any Mythic.)

    » Click to show Spoiler - click again to hide... «
    Ooze garden + Unearth: I wish that unearth would show up in more of junds colors, cause this has so much potential, it makes me sad that they're putting the shard restrictions on the pre-releases.

    Exalted: This one is sort of obvious, but I think opening a strong enough exalted base in your sealed pool could lead to a deck that would just beat face at your tournament.

    Pseudo Affinity: Although it would require a very artifact heavy sealed pool, I think this may be one of alaras strongest limited deck types Etherium Sculptor would be an absolute must though.

    Ad nauseam: Hmm... certainly intriguing.

    ^^Contains alara spoilers^^

  19. Today I bought the "Batwing Battle Over Gotham City" set. I'm planning on keeping a few of the pieces and minifigures, but I plan on selling the rest of the pieces. I'm not that interested in the vehicles since they just don't look that flattering to me. :P

     

    Hopefully I can make some kind of model with the minifigs.

     

    -Mef

  20. ...Yeah.

     

    I guess you can imagine the band preforming or something.

     

     

    Also, out of pure boredom, I made TDI edits of Yumi and William from Code Lyoko.

    Not really great, but thought I'd do something with them now that I made them.

  21. Splashmaster
    Latest Entry

    ME AM TAKE NAP NOW!

     

    BUNNYMANS BETTER NOT TRY TO ESCAPE OR DEFEAT ME!

     

    zzz.png

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